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EURORDIS Black Pearl Awards 2019

Date: Tuesday, 12 February 2019 18:30 - 23:30

Venue: Hotel Le Plaza, Adolphe Maxlaan 118/126, Brussels 1000, Belgium

The EURORDIS Black Pearl Awards is an annual awards ceremony which takes place in Brussels in February to launch the month of Rare Disease Day. Since 2012, EURORDIS-Rare Diseases Europe has organised this event to recognise the major achievements and outstanding commitment of patient advocates, patient organisations, policy makers, scientists, companies and media who strive to make a difference for the rare disease community.



18.30 – 20.45 Welcome Address & Seated Dinner

20.45 – 22.30 Awards Ceremony

22.30 – 23.00 After dinner networking


Why is the event called the “EURORDIS Black Pearl Awards”?

The formation of a natural black pearl is extremely rare – just like these pearls, the recipients of the EURORDIS Black Pearl Awards are unique and deserve our recognition and admiration. The EURORDIS Black Pearl Awards are presented to individuals, organisations and companies who dedicate their lives to making a difference for the rare disease community. Despite important advances, the rare disease community continues to face enormous challenges. The work and achievements of the awardees are of paramount importance to improving lives and finding cures for people living with a rare disease.


Why in February?

The EURORDIS Black Pearl Awards takes place beginning February to launch the month of  Rare Disease Day; an international awareness-raising campaign for rare diseases, led by EURORDIS. During February, thousands of events take place in over 90 countries and regions, uniting millions of people living with a rare disease worldwide.





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All Dates

  • Tuesday, 12 February 2019 18:30 - 23:30

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